Dementia Care Resources

Resources
Recommended readings, websites, films and videos for professionals, family members, caregivers, and care partners.

READINGS | WEBSITES | FILMS & VIDEOS

READINGS

Bayles, K. & Tomoeda, C. (1993). The ABCs of dementia. Tucson, AZ: Canyonlands.
Bell, V., & Troxel, D. (2008). The Best Friends book of Alzheimer’s activities (volume two). Baltimore: Health Professions Press.
Bell, V., & Troxel, D. (2004). The Best Friends book of Alzheimer’s activities (volume one). Baltimore: Health Professions Press. Bell, V., & Troxel, D. (2003). The Best Friends approach to Alzheimer’s care. Baltimore: Health Professions Press.
Bell, V., & Troxel, D. (2001). The Best Friends staff: Building a culture of care in Alzheimer's programs. Baltimore: Health Professions Press.
Bell, V., & Troxel, D. (2012). A dignified life. Deerfield Beach: Health Communications.
Bourgeois, M. S. (2007). Memory books and other graphic cuing systems: Practical communication and memory aids for adults with dementia. Baltimore: Health Professions Press.
Bourgeis, M. S., & Hickey, E. (2009). Dementia: From diagnosis to management- A functional approach. New York: Psychology Press.
Bowlby, C. (1993). Therapeutic Activities with persons disabled by Alzheimer’s disease and related disorders. Gaithersburg, MD: Aspen Press.
Brackey, J. A. (2007). Creating moments of joy for the person with Alzheimer’s or dementia (4th edition). Indiana: Purdue University Press.
Brawley, E. C. (1997). Designing for Alzheimer’s disease: Strategies for creating better care environments. New York: John Wiley & Sons.
Buettner, L., & Martin, S. L. (1995). Therapeutic recreation in the nursing home. State College, PA: Venture.
Callone, P., Vasilof, B., Brumback, R., Maternach, J., & Kudlacek, A. (2006). A Caregiver's guide to Alzheimer's disease: 300 tips for making life easier. New York: Demos Medical Publishing.
Cost, J. K. (2003). Learning to speak Alzheimer’s. London: Vermilion
De Klerk-Rubin, V. (2008). Validation techniques for dementia care: The family guide to improving communication. Baltimore: Health Professions Press.
Eisner, E. (2013). Engaging and communicating with people who have dementia: Finding and using their strengths. Baltimore, Maryland: Health Professions Press.
Feil, N. & de Klerk-Rubin, V. (2012). The Validation Breakthrough (3rd edition). Baltimore: Health Professions Press.
Genova, L. (2009). Sill Alice. New York: Gallery Books.
Hellen, C. R. (1998). Alzheimer's disease: Activity-focused care. Woburn: Butterworth-Heinemann.
Joltin, A., Camp, C. J., Noble, B. H., & Antenucci, V. M. (2005). A different visit: Activities for caregivers and their loved ones with memory impairments. Ohio: Myers Research Center.
Kindig, M. N., & Carnes, C. (1993). Coping with Alzheimer’s disease and other dementing illnesses. San Diego, CA: Singular Publishing Group.
Larkin, M. (1995). When someone you love has Alzheimer’s. New York: Dell.
Mace, N. L., & Rabins, P. V. (2011). The 36-hour Day: A family guide for caring for people who have Alzheimer’s disease, related dementias, and memory loss (5th edition). Baltimore: The Johns Hopkins University Press.
Mahoney, E., K., Volicer, L., & Hurley, A. C. (2000). Management of challenging behaviors in dementia. Baltimore: Health Professions Press, Inc.
McCone, V. (2003). Butterscotch sundaes: My mom’s story of Alzheimer’s. Sanborn, MN: Autumn Sparrow Press.
Moffett, P. (2007). Ice cream in the cupboard. Great Neck, NY: Garrison-Savanna Publishing, LLC.
Power, G. A. (2010). Dementia beyond drugs: Changing the culture of care. Baltimore, Maryland: Health Professions Press.
Power, G. A. (2014). Dementia beyond disease: Enhancing well-being. Baltimore, Maryland: Health Professions Press.
Radin, L., & Radin, G. (2003). What if it's not Alzheimer's? Amherst: Prometheus Books.
Robinson, A., Spencer, B., & White, L. (1989). Understanding difficult behaviors. Ypsilanti: Eastern Michigan University Ypsilanti.
Ziegler, R. C. (2009). Let’s look together: An interactive picture book for people with Alzheimer’s and other forms of memory loss. Baltimore: Health Professions Press.

Readings

WEBSITES

Advancing Excellence in America’s Nursing Homes Campaign
nhqualitycampaign.org
Alzheimer’s Association
alz.org
Alzheimer's Disease Education and Referral Center
nia.nih.gov/alzheimers
The American Health Care Association
ahcancal.org
California Advocates for Nursing Home Reform
Includes website dedicated to the Campaign to Stop Chemical Restraints in Nursing Homes
canhr.org
The California Association of Health Facilities
cahf.org
California Association of Long-Term Care Medicine
caltcm.org
Family Caregiver Alliance
caregiver.org
Health Services Advisory Group
HSAG, California’s state QIO, provides tools and resources, including a Change Package for nursing homes, Dementia Oversight Team Care Options Meetings (DOT.COM) resources and additional tools.
hsag.com
Medicare.gov Nursing Home Compare
medicare.gov/nursinghomecompare/
Music and Memory
musicandmemory.org
The National Consumer Voice for Quality Long-Term Care
theconsumervoice.org
The National Ombudsman Resource Center
ltcombudsman.org
Pioneer Network
Pioneer Network advocates and facilitates deep system change and transformation in our culture of aging. They provide a wide array of person-centered care training tools and resources.
pioneernetwork.net
University of Iowa – Geriatric Education Center
Includes Improving Antipsychotic Appropriateness in Dementia Patients, a website that includes information and resources to help clinicians, providers, and consumers better understand how to manage problem behaviors and psychosis in people with dementia using evidence-based approaches.
www.healthcare.uiowa.edu/igec/IAADAPT

WEBSITES

FILMS & VIDEOS

Webinar | Person Centered Care and Activity Services
This pre-recorded webinar provides best practice care resources for activity service professionals serving individuals who are living with dementia. The learning objectives of this tool emphasize putting the person before the situation, understanding the disease process, knowing the residient, creating an engaging environment, cultivating best practice programming, using activity as an intervention and developing a person-centered care plan.

Watch

The Villages of Southern HIlls | A Champion for Change
Leadership and care providers at the Villages of Southern Hills in Tulsa, OK support a national and state initiative to reduce unnecessary antipsychotic medication. In this video, you'll meet Bill, and hear how his providers engaged him in the decision to reduce and ultimately eliminate the antipsychotics he had been on for years.

Developed by The Oklahoma Foundation for Medical Quality NH Learning & Action Network (LAN) team.

Watch it on YouTube
HBO's The Alzheimer Project
HBO’s THE ALZHEIMER'S PROJECT is a multi-platform series which takes a close look at groundbreaking discoveries made by the country's leading scientists, as well as the effects of this debilitating and fatal disease both on those with Alzheimer's and on their families. (Direct source: hbo.com)

HBO’s The Alzheimer’s Project: Memory Loss Tapes
While there is hope for the future as science gains momentum, millions of Americans are currently affected by the painful and deadly consequences of Alzheimer's. This verité documentary profiles seven people living with the disease, each in an advancing state of dementia, from its earliest detectable changes through death. (Direct source: hbo.com)

HBO’s The Alzheimer’s Project: Grandpa, Do You Know Who I Am?
This film tells five stories of children, ages 6-15, who are coping with grandfathers or grandmothers suffering from Alzheimer's disease. Maria Shriver provides commentary and delivers valuable "lessons" for the kids, urging them not to blame themselves for what their grandparents do or say. (Direct source: hbo.com)

HBO’s The Alzheimer’s Project: Momentum in Science Parts 1 and 2
This two-hour, two-part documentary takes viewers inside the laboratories and clinics of 25 leading scientists and physicians, who seek to discover what can be done to better detect and diagnose Alzheimer's, delay the onset of memory loss, affect the brain changes associated with the disease, and ultimately prevent Alzheimer's disease altogether. (Direct source: hbo.com)

HBO’s The Alzheimer’s Project: Caregivers

Caregivers is a collection of five portraits, each of which highlights the sacrifices and successes made by people
experiencing their loved one's gradual descent into dementia. (Direct source: hbo.com)

Videos

Resources Recommended readings, websites, films and videos for professionals, family members, caregivers, and care partners.

READINGS | WEBSITES | FILMS & VIDEOS

Bell, V., & Troxel, D. (2008). The Best Friends book of Alzheimer’s activities (volume two). Baltimore: Health Professions Press.

Bell, V., & Troxel, D. (2004). The Best Friends book of Alzheimer’s activities (volume one). Baltimore: Health Professions Press. Bell, V., & Troxel, D. (2003). The Best Friends approach to Alzheimer’s care. Baltimore: Health Professions Press.

Bell, V., & Troxel, D. (2001). The Best Friends staff: Building a culture of care in Alzheimer's programs. Baltimore: Health Professions Press.

Bell, V., & Troxel, D. (2012). A dignified life. Deerfield Beach: Health Communications.

Bourgeois, M. S. (2007). Memory books and other graphic cuing systems: Practical communication and memory aids for adults with dementia. Baltimore: Health Professions Press.

Bourgeis, M. S., & Hickey, E. (2009). Dementia: From diagnosis to management- A functional approach. New York: Psychology Press.

Bowlby, C. (1993). Therapeutic Activities with persons disabled by Alzheimer’s disease and related disorders. Gaithersburg, MD: Aspen Press.

Brackey, J. A. (2007). Creating moments of joy for the person with Alzheimer’s or dementia (4th edition). Indiana: Purdue University Press.

Brawley, E. C. (1997). Designing for Alzheimer’s disease: Strategies for creating better care environments. New York: John Wiley & Sons.

Buettner, L., & Martin, S. L. (1995). Therapeutic recreation in the nursing home. State College, PA: Venture.

Callone, P., Vasilof, B., Brumback, R., Maternach, J., & Kudlacek, A. (2006). A Caregiver's guide to Alzheimer's disease: 300 tips for making life easier. New York: Demos Medical Publishing.

Cost, J. K. (2003). Learning to speak Alzheimer’s. London: Vermilion

De Klerk-Rubin, V. (2008). Validation techniques for dementia care: The family guide to improving communication. Baltimore: Health Professions Press.

Eisner, E. (2013). Engaging and communicating with people who have dementia: Finding and using their strengths. Baltimore, Maryland: Health Professions Press.

Feil, N. & de Klerk-Rubin, V. (2012). The Validation Breakthrough (3rd edition). Baltimore: Health Professions Press.

Genova, L. (2009). Sill Alice. New York: Gallery Books.

Hellen, C. R. (1998). Alzheimer's disease: Activity-focused care. Woburn: Butterworth-Heinemann.

Joltin, A., Camp, C. J., Noble, B. H., & Antenucci, V. M. (2005). A different visit: Activities for caregivers and their loved ones with memory impairments. Ohio: Myers Research Center.

Kindig, M. N., & Carnes, C. (1993). Coping with Alzheimer’s disease and other dementing illnesses. San Diego, CA: Singular Publishing Group.

Larkin, M. (1995). When someone you love has Alzheimer’s. New York: Dell.

Mace, N. L., & Rabins, P. V. (2011). The 36-hour Day: A family guide for caring for people who have Alzheimer’s disease, related dementias, and memory loss (5th edition). Baltimore: The Johns Hopkins University Press.

Mahoney, E., K., Volicer, L., & Hurley, A. C. (2000). Management of challenging behaviors in dementia. Baltimore: Health Professions Press, Inc.

McCone, V. (2003). Butterscotch sundaes: My mom’s story of Alzheimer’s. Sanborn, MN: Autumn Sparrow Press.

Moffett, P. (2007). Ice cream in the cupboard. Great Neck, NY: Garrison-Savanna Publishing, LLC.

Power, G. A. (2010). Dementia beyond drugs: Changing the culture of care. Baltimore, Maryland: Health Professions Press.

Power, G. A. (2014). Dementia beyond disease: Enhancing well-being. Baltimore, Maryland: Health Professions Press.

Radin, L., & Radin, G. (2003). What if it's not Alzheimer's? Amherst: Prometheus Books.

Robinson, A., Spencer, B., & White, L. (1989). Understanding difficult behaviors. Ypsilanti: Eastern Michigan University Ypsilanti.

Ziegler, R. C. (2009). Let’s look together: An interactive picture book for people with Alzheimer’s and other forms of memory loss. Baltimore: Health Professions Press.

Resources
Recommended readings, websites, films and videos for professionals, family members, caregivers, and care partners.